We’ve created a map which lists all the cases of KCNMA1-linked channelopathy that are currently known to us. Each pin represents a person or family that KCIAF has been in contact with, in some form. We know for certain there are many dozens more confirmed cases, but at this point they likely do not yet know about our advocacy organization. We’ll update the map as we learn about new cases.
Each pin represents the approximate location of a KNCMA1 case. For now, there is only one pin if there are multiple people in the same town (for example, multiple family members who have a KCNMA1-mutation).
If you have a KCNMA1-linked channelopathy and are not represented on the map above, send us an email and we’ll add you!